How does the Agence de la biomédecine take concrete action to benefit patients?

The Agence de la biomédecine works to benefit patients through a number of initiatives, at both national and regional level.

• Regional presence: Agence de la biomédecine is present throughout France, through regional departments that ensure effective coordination between local healthcare players, such as hospitals and regional health agencies (ARS). This organization makes it possible to adapt the Agency's actions to local specificities, in particular to ensure equitable access to transplantation throughout France.

• Donation promotion campaigns: The agency regularly runs campaigns to raise public awareness of the importance of organ, tissue, hematopoietic stem cell and gamete donation. These campaigns aim to increase the number of voluntary donors and promote a better understanding of medical practices.

• Patient support and information: The agency provides clear, accessible information on complex subjects such as organ and tissue donation and transplantation, hematopoietic stem cells and medically assisted reproduction, to help patients and their families, as well as donors, to better understand their rights and the steps to be taken. It also works with patient associations to ensure that the needs and expectations of healthcare system users are taken into account. It informs the general public and healthcare professionals about scientific and legislative developments in the field of bioethics.

• Close collaboration with healthcare professionals: The agency oversees medical practices in its field of competence, and provides recommendations for good practice drawn up with healthcare professionals. It offers specialized training to develop their skills and provides them with up-to-date information on legislative and scientific developments. The agency works in partnership with healthcare establishments, associations and research organizations to coordinate and improve donation and transplantation practices throughout France. It supports professionals by providing practical tools and documentary resources, and by managing medical databases. These concrete actions, carried out in close collaboration with healthcare professionals and bioethics experts, demonstrate Agence de la biomédecine's commitment to improving patient care and quality of life in its areas of expertise.