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Collection methods

Published on 22 January 2025

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Using secure systems and specific applications tailored to each area of intervention, the agency collects data essential to its evaluation, research and information missions. These tools make it possible to collect both aggregate and individual data, while guaranteeing confidentiality. Find out more about the main data collection methods in this article.

Specific collection methods for different business sectors

The agency uses secure applications to collect data relating to its areas of expertise. Each tool is designed to meet the specific requirements of the activities concerned:

  • Medical assistance for procreation (MPA) and preimplantation diagnosis (PGD) Data from MPA and PGD centers are collected in two forms: aggregated and individual (particularly for MPA attempts). Individual data is collected via the Gaia application (Gestion et Analyses Informatisées de l'Assistance Médicale à la procréation), a secure tool that enables centers to enter their activity data online.

  • Post-natal constitutional genetic data is collected in two forms: aggregated and individual (particularly for examinations). These data are collected via a secure tool that enables centers to enter or deposit their data online.

  • Pre- and post-natal diagnosis and multi-disciplinary prenatal diagnosis centers (CPDPN) Centers carrying out pre- or post-natal diagnosis activities, as well as CPDPNs, submit an annual report including aggregated or individual data.

  • Organ and tissue procurement and transplantation Individual data relating to organ and tissue procurement and transplantation are collected using the CRISTAL application, structured into several modules:

    • CRISTAL Donor for data on deceased donors.

    • CRISTAL living donor for data on living donors.

    • CRISTAL recipient for patients awaiting transplant or transplant recipients.

  • Hematopoietic stem cell (HSC) harvesting and transplantation Data relating to HSC harvesting and transplantation are collected via the EBMT-Registry application, a system managed by EBMT. The SYRENAD application collects data on voluntary HSC donors (registration of new donors and search for compatible donors), USP data (registration of new USPs and search for compatible USPs) and data on patients undergoing HSC transplantation (registration of new patients, connection for international donor search, donor selection and activation, management of retrieval requests).

  • Chronic kidney disease The REIN registry combines several sources of individual data:

    • Renal transplant data are collected via the CRISTAL application.
    • Dialysis data come from the DIADEM application.

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