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Data collection

Published on 20 February 2025

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The REIN registry, set up by the REIN network as part of the chronic kidney disease observatory, centralizes data on patients with stage 4 and 5 chronic kidney disease in France. These data, essential for epidemiological monitoring and improving practices, are collected according to a national protocol and regional clinical research attachés. On this page, you'll find details of the procedures, forms and model documents required to collect and transmit this data.

Data collection applications

REIN registry data comes from several secure sources and applications developed by the Agence de la biomédecine:

  • DIADEM (DIAlyse Données Épidémiologiques et Médicales) collects data on dialysis;
  • Cristal collects data on kidney transplants and registration on waiting lists.

Data collection methods

REIN registry data are collected in three ways:

  • Data entry by medical or administrative teams;
  • Data collection in healthcare establishments by clinical research associates (CRAs) and clinical study technicians (CSTs) throughout France;
  • Automatic extraction of information from dialysis software to the DIADEM application (Electronic Data Interchange).

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